We heard from Ephraim's doctor this morning (a few days earlier than expected) and all his blood work came back normal. So that is good news. The only bad part is that we still have no idea what is going on with this little body. So now we sit and wait to see what the doctor wants to try next.
We went to the doctor on Friday to talk to him about Ephraim's continued problems. We were there for almost an hour. Questions and answers went back and forth between the doctor and me until we have a testing plan lined up.
So today we went in for round 1 of testing.. blood work. Ephraim is getting to be such a trooper with all of this blood work being done. The great news today on the blood work is that they only had to poke him 1 time!!! Normally when he gets blood work done, he clots so quickly that they have to poke him again. So yeah for the 1 poke today!!!
People are laughing at me because I am praying that they find something with this blood work at the same time that I'm praying that they don't. Please pray with me on this too.
I should hopefully have all of the results by early next week
Well, the doctor office called while TJ and I were away for our anniversary. (go figure) I called them back around 10 this morning (giving them an hour to get through their weekend messages.) I talked to the nurse and the doctor wants an even stricter diet than before. So here it is now.
No milk- both liquid and in products No soy- both in liquid and in products No juice- thankfully we can have this in products :-) and now... no rice milk
His fluid intake is water and Nutramigen (which by the way is VERY expensive). Solid food is whatever we can find without the above 3 ingredients.
Doesn't want to do any further testing for food allergies as he doesn't think he has them. I still believe he has a food allergy or intolerance to something (my prediction is still the soy)... This taking away yet another food ingredient is making this diet very difficult.
In January he goes to the doctor for his last round of shots... I think between now and then, I will keep a diary and give it to him at that time. I know it will only be a month, but when we first started taking away foods in June... they told me that I should start seeing improvements within a few days.
Ephraim is still having nasty diapers. His allergy test on soy and milk came back negative. I talked to the doctors office on November 23 and told them what was going on. They said that the tests are not 100% accurate and it could be an intolerance instead of an allergy (which then it wouldn't show up with that test). She said that she would talk to the doctor and nurse and figure out what the next steps would be.
I called back yesterday (December 2) at 1:30ish and said I was still waiting for a phone call on what the next steps will be for Ephraim and asked to speak to the Nurse or Doctor directly. She said that they are both with a patient, but would give them my message.
It is now December 3 at 4:20 and I still have not received a phone call. What do you think that I should do? How often should I be calling the office when it isn't a life threatening condition?
I want to get to the bottom of this... more for Ephraim's sake than my own.
One of these days I will actually be able to post pictures and tell you about things going on this week... but in the meantime, you can imagine your own story about life in the this household. If you want, you can post a comment about how you think it is going :-)
I was debating on posting this since I don't want to bost about something we did... but I truly feel that the Lord was at work on this, so I have to tell you about this amazing story.
My life group (what my church calls a small group or bible study) decided to take on some service projects during the session year. The first one that we decided to do was put together a food box for a family during the Thanksgiving holiday. One of our group members uses Food Angel Ministries and they had a box of food for a good price. So we decided as a group to purchase one of these boxes.
We looked and looked for a family and nobody was speaking up until the day before Thanksgiving. A member of our church told us that we should call Love Inc. So, I gave Love a call but they did not know of any families at that time. The person who normally handles the food give-a-ways was on vacation, so they could not contact her to find out if there was a family in need. They told me to contact Mary ** at an agency called ACCESS.
I called Mary and got her voicemail. I was thinking that she was probably gone for the day and won't hear back until probably Friday (11/27) or Monday (11/30). Well, that night, she called back and told me about this family of 9 that needed some food. I'm thinking... 9 people, we only have enough food for a family of 4!!! I told her that I would contact the people in my group and see what we could do. Well... our group decided to go out and buy more food with all of the Thanksgiving deals that were going on. We got enough food so this family would have enough food for an extra meal. I called Mary on Monday morning and told them that we would help out this family. They gave me a name and number for a lady name Emily**. I also found out that Kim ** could deliver it on Tuesday (12/1) at the earliest... otherwise it would have to be during the weekend. Kim and her husband were storing the food at their house, so we kind of had to go on their schedule
So, I called Emily ** and asked if she would be around tomorrow (actually today now) so we could deliver some food for her and her family. I thought I gave her a heart attack on the phone because she was so overjoyed that we had food for her. I talked to her a little bit more and I found out she was feeding her kids water since Sunday!!! That's 2 days without food. I could not imagine (and I was feeding my kids lunch while I was talking to her)
I called Kim ** and told her the situation and asked if there was any way we could do this tonight. She said that she would do her best to find a babysitter for her kids and get out of work early. She even ran to the store and got some more food, so we could make a hot meal for them. I posted on my facebook page about this family, and I had people call me up saying they had some food for this family too. TJ and I ran around during the afternoon collecting food from different families.
By the time that we got all of the food in the back of the van... Emily would have enough food to feed her family for a few days, maybe even a week!!!
Once we got to Emily's house, we found not much around. Windows were broken and covered with plastic, a whole room of the house completely empty. She had what looked like 3 kids still in diapers. It was really sad, but it still brought smiles to our faces. There was this little boy who was around 3 years of age that got so excited about having milk. We were trying to pray for this family and this little boy was jumping around and yelling about this milk. It was so cute.
I wish you could have all been there and experienced this with me. I'm not the best storyteller and probably lost a lot of the details from last night. But God was definitely at work yesterday by us finding babysitters at last minute for both TJ and I and Kim's family, getting all of this extra food and being able to deliver it yesterday instead of waiting until today. Praise the Lord.
The bible verse... "I was hungry and you gave me something to eat" came to my mind last night while laying in bed. Thank-you Lord for giving us the resources to go and help this family.
**All names have been changed for their protection
I can do all things through Christ which strengthens me.
People are asking me how I get my groceries so cheap. For our family of 4... our MONTHLY grocery bill is between $50 $100. Some of the things that I have gotten are Nature Valley Nut Clusters for $1.00 a bag (normally $2.99 a bag) and I never pay for toothpaste.