Last night I was not able to sleep at all. Don't know why that is, but it seems like the nights the kids both sleep through the night, I am awake for hours just laying there. Last night I actually got out of bed and was productive and sent out some e-mails (surprised I have not received comments on what time I was sending e-mails)
This morning I dropped Micah off at a good friend of mine and she too him and her boys to Playworld. Sounds like they had a great time.
While the Micah was at Playworld, Ephraim had another doctors appointment. This is to see how he is growing and to figure out what to do about his nasty diapers. Last week Friday the doctor called to see how the new diet was going (he put him on that around time of my last post). I told him that the nasty diaper frequency was down, but not much else has changed. He thought that was really good and said to slowly start introducing soy milk back. That was a disaster in itself as the frequency started to go back up and he started to spit up a lot. (this was after his first glass of soy milk). Today, I asked the doctor if there was any way possible if we could get a allergy and/or an intolerance test. He agreed to the test, but says to get the most accurate results his immune system needs to be better. So we are holding off on the test until September so we can get more vaccinations in him and get healthier since he was just getting over a sinus and an ear infection that he had last month. He mentioned at the appointment about putting him back on formula, but this time on a special formula that is really high in nutrients to help him grow. He was going to talk to his partner and give me a call back.
He then checked out his head. The nurse noted that his head circumference was off the charts. The doctor also noticed that his soft spot was still open. With the nurses notes and the soft spot being open he is concerned about whats going on "in his head." He took some more measurements just to be sure that the nurses notes were accurate because he says kids his age can move around not creating the best measurements. 5 measurements later and still getting the same thing, felt sure that his head was actually that big. Now, TJ and I have not noticed his had getting big, shirts go over his head the same as they did when he got home, so this was news to me. The doctor is going to check with a neurologist and see what he thinks, but we may need to get a CT.
Since we do not have Ephraim on dairy, he cannot have yogurt to help with the bloating of all the pasta that he is supposed to be having. We also have to start him on probiotics. That stuff is cool... just pour a packet in his rice milk or water and he is good to go. It is on the expensive side, so I will be checking out to see if I can find some coupons for it.
While at Walgreen's to pick up the probiotics, the doctor office called to let us know to put him on the rice milk for sure and to give us the appointment time for the nutritionist. He/She will be working with us to make sure Ephraim has a well balanced diet since his diet is so limited.
A little while later, he called back again and said that he was able to sit down with his partner and does want us to put Ephraim onto this expensive high nutrient formula 3 times a day. He said this stuff is about $30 to $40 a can and he has some samples at the office for us to help us out. (what a great guy) He also had some more questions for me. He was asking about Ephraim's legs. After we left it was bugging him that Ephraim could only army crawl and not really use his legs. He asked about his legs and I told him that he LOVES to stand and puts a lot of weight on them. This made the doctor very happy and said he was ripping up the order for some x-rays of his legs.
Keep us in your prayers during this time. I am so glad to know that Christ does not give anything that we cannot handle because I sure couldn't handle this without Him.
6 years ago